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glossectomygirl
Apr 28, 20221 min read
Push it
TWO MORE DAYS OF RADIATION!!!!!!!!!!!!!! Compared to many people i think i have weathered the 13 hours surgery and 33 radiation...
87 views6 comments
glossectomygirl
Apr 21, 20222 min read
Glossy goes to Group
When Miguel and I left Berkeley, we joked that we were kicked out because we didn't drink coffee or wine and we didn't go to 'group'....
116 views6 comments
glossectomygirl
Apr 10, 20224 min read
My new voice box(es)!
a review of small portable bluetooth speakers Bluetooth speakers are my new voice box! Currently I have settled into using my phone with...
200 views5 comments
glossectomygirl
Apr 1, 20223 min read
Anti Cancer (an old way of life)
Some of my early memories are of the smells of the health food store, coming home delighted to have 'candy' - honey and sesame seed...
146 views6 comments
glossectomygirl
Mar 27, 20221 min read
Family, Friends, Family, Friends....
This is a quick post to again say how very very important all the support from our family and friends has been. I think that before I was...
87 views7 comments
glossectomygirl
Mar 21, 20223 min read
ENJOY YOUR DAMN TONGUE!
I am closing in on 2 months without a tongue. Not having a tongue REALLY makes you appreciate what you took for granted. I have touched...
132 views3 comments
glossectomygirl
Mar 12, 20221 min read
Now and Then and In-between
This afternoon 3-12-22 vs August 2022 (ahhh...to have a neck...) Side view of war wounds 3-12-22. The swelling at this point is mainly...
341 views11 comments
glossectomygirl
Mar 10, 20221 min read
Glossy gets a fitting!
Glossectomy Girl, or Glossy as her friends call her, just got fitted for her new superhero mask! While sitting on the flat stretcher of...
112 views4 comments
glossectomygirl
Mar 9, 20221 min read
Normal
Two years ago our Normal lives were turned on end. We never could have imagined a day when donning a mask to go shopping would be Normal....
149 views7 comments
glossectomygirl
Mar 3, 20222 min read
I feel....
Like someone is slowly choking my neck 24/7. Tightness wraps my entire neck and it's numb to the touch. Rotating my head pulls on the...
156 views6 comments
glossectomygirl
Feb 26, 20222 min read
Cancer in the day of Covid
San Francisco, one of the most liberal cities on earth, just lifted the indoor mask mandate. For those of us who are immuno-compromised...
100 views4 comments
glossectomygirl
Feb 25, 20222 min read
Homemade Peg Juice
I tried to find recipes for Peg formulas in vain. I even bought one online recipe book and was so disappointed when it had ingredients...
84 views4 comments
glossectomygirl
Feb 23, 20222 min read
WATER
When you have a laryngectomy stoma (like a tracheostomy but when they have removed your larynx as well) water can be your enemy. Gone are...
122 views5 comments
glossectomygirl
Feb 20, 20221 min read
Ode to Dog
Until several years ago i wasn't a dog person. Until Harlee i wasn't THAT kind of dog person. The annoying one who takes their dog...
110 views4 comments
glossectomygirl
Feb 19, 20222 min read
Setbacks
Thursday night set me back on my heels. I was gaining confidence and feeling good about progress. Setbacks are to be expected, i get it,...
115 views4 comments
glossectomygirl
Feb 17, 20221 min read
My First 'Word'
My new anatomy is proving to have certain hidden talents! Now that my mouth is less swollen and they took the tube out, i am working on...
174 views7 comments
glossectomygirl
Feb 16, 20222 min read
A Whiff
A whiff of Trader Joes Pad Thai made me giddy! It hadn't occurred to me that smell would be another casualty of this cancer. But guess...
143 views3 comments
glossectomygirl
Feb 15, 20222 min read
Call me Larry
My face has evolved (3 weeks post surgery, 3x smaller) !!! Last night the girls realized that I no longer look like Ryan R - I have a new...
154 views4 comments
glossectomygirl
Feb 14, 20221 min read
FAMILY
I have spent a good deal of my life, like most people, working to be successful. First at school and then many years and countless hours...
239 views10 comments
glossectomygirl
Feb 12, 20221 min read
It's Gross
Siena and Ela tell me i'm wrong, but they are too nice. The wreckage left by this surgery is gross. I'm sharing the picture of my leg...
163 views5 comments
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